Thursday, April 7, 2011

Mister is Getting Tubes!

 Well I may have mentioned (I don't remember) that Mister has been having problems with his speech, as in he communicates on the same level of 6-9 month olds. He is pretty much 75% of the day crying and screaming for one reason or another because he cannot effectively communicate with us his needs and feelings, which is pretty much a really hard thing to deal with every single day by myself. He has taught me more patience than anything else in my life. So when we started with figuring out what was wrong at the beginning of the year we started with an audiologist who did a simple hearing test in a booth which he failed, either he was super uninterested-my opinion- or he really did fail. Then she did a simple pressure test in both ears which showed negative pressure, worse in he left ear than his right. She said then he may have fluids in his ear behind the drum that she couldn't see and to come back in two weeks for a recheck the fluid should be gone by then. Well two weeks later it was not gone and in fact the pressure test was worse, so then it was onto his regular doctor for other options. I have to say we never did get a newborn hearing test because he wasn't born in a hospital and we failed to even bother with it. So his regular doctor said she could put him on a round of antibiotics I asked why when there is no infection just fluid it seemed, she said just in case, I said no send us to an ENT. So she put the referral in.
 In the meantime he has been getting speech therapy and OT both twice a month through our states early intervention program. We have been working with Mister on baby signs since he was a baby and he never took to it, and now this therapists really want us to push with it but he still is resisting on a huge level. He seriously refuses to do any signs with me at all on any level no matter what. He can be in the best most super mood but if I ask him to sign more once at like a meal he turns into super screaming Mister and throws things at me during some point of my efforts...so this is failing. Although in further attempts to make me seem insane he does things for other people when they ask him. Like his therapists he just goes for it and signs for them whenever they ask him too... he thinks it's funny probably. He may have inherited my super sarcastic sense of humor... may have. ha ha.
 SO today was his ENT visit, we sees the same wondering doctor that I do! We agreed on getting tubes put in both ears. As he described it Mister's ear drums are sucked back into his ears way more than normal think of a balloon around a vacuum tube and turn the vacuum on, it sucks it down in there. The drums are sucked down in so much its making it near impossible for the small bones and everything else to vibrate and work properly thus causing hearing loss. Mister can hear, just really muffled and poorly. He seemed super optimistic that getting tubes in with equal the pressure in his ears. Again he failed the pressure test and had negative pressure in both ears, worse in the left. It would balance out everything and allow any fluid that has collected inside there to drain out. He said it really should be the fix of this, if not children's hearing aides have come a long way in recent years.
 So we have to wait on Tricare to approve the surgery- which may take like a week. Hopefully we can get him in and done before we take off for an Ohio vacation later this month. The whole things will last no longer than 20 minutes and he won't be fully put under, just laughing gas basically. After the surgery if he needs Tylenol that is all! It's really the most simple surgery he does but one of the most beneficial for those who need it! So I am excited to finally be having some answers and a possible fix...I was thinking tubes since the beginning as I just knew in my mommy gut that something was wrong. I am not too excited that this has to happen and my little boy is having any kind of surgery even minor! What mom would? So hopefully he have good results and he starts getting better once he can hear us for real! I hope that after he has the surgery he passed his hearing tests!
 So we just have to wait for the scheduling lady to call us!

   On a little update for me after my surgery since we saw my doctor today. I am apparently one of the slowest healers as I still have a lot not healed. I am having a lot of facial pain more on the left side and more than normal bloody discharge and more than I should bloody noses, even minor I shouldn't be having any bloody noses at this point. So I am on a round of antibiotics and a steroid pack plus super saline washing and nasenox (however that is spelled). I hate to admit that I am still having headaches that only go away for a few hours when I max out on OTC headache meds..they come right back. I am beyond disappointed in this, what if my surgery didn't actually help my headaches which was my main reason for seeing this doctor to begin with? I mean I know I had to have the surgery it was unavoidable but my head is still really hurting and it really upsets me. I need to figure this out.

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